I attended a Lyme Disease Forum at the Crandall Library in Glens Falls, NY today from 10am- noon.
It was hosted by Senator Betty Little and Assemblymen Dan Stec.
There were four people on the panel: Dr. Bryon Backenson, an epidemiologist from the New York State Department of Health; Dr. Timothy Sellati, from the Trudeau Institute; Dr. Jennifer Rowley, MD, a local Infectious Disease Specialist; and Holly Ahern, Associate Professor of Microbiology, SUNY Adirondack.
Dr. Jennifer Rowley, MD seems like she understands that Lyme is a crisis, an epidemic and that it is difficult to treat in many cases. She seems like she is one of the good doctors out there. There were people in the audience who had seen her and they said she is kind and understanding.
She did not talk long, but when she did, she pointed out that there are many people who are suffering and not a lot of science based medicine that can help them. She stressed that more money needs to be put toward research so that doctors have more options for treatment. It's a slippery slope these doctors walk. If they treat, they can be sanctioned.
As many of you know, the pediatrician who treated my son for Lyme Disease is being investigated by the OPMC. She is having to spend her own money on her defense lawyer and she is in need of help to defend herself against this witch hunt. http://www.drkaricares.com
One thing that was brought up that I completely agree with is that the money allotted for research is disproportionate for the amount of new cases that are reported of each of these diseases. More money hast to be put toward the research of all tick borne diseases, including Lyme Disease.
|Disease||Annual new cases 2012||Money for Research|
|West Nile Virus||5,700||$29 Million|
|Hepatitis C||1,300||$112 Million|
|HIV / Aids||56,000||$3 Billion|
|Lyme Disease||312,000||$25 Million|
When you take a look at those numbers… remember, those are NEW cases EACH year… It was brought up at this forum that according to those numbers, that would mean there are 3.5 million people in the U.S. that are sick from Lyme Disease.
Let's get some money for research to help patients AND doctors!
There is another Bill in New York that would require health insurance to cover long term care for patients with Lyme Disease and other Tick borne Diseases. S541 – 2013 NY State